The Story of My April Butterfly: My Little Angel

Wednesday, December 17, 2008

My Little Angel

Maggie brought home these little Christmas trinkets
from school... how very sweet!

My favorite was this little angel with Maggie's school picture.

Maggie has just a few more days before her winter break...
She is doing amazingly well in school!

We are so proud of her,
and continue to enjoy every new word she has to share with us!

Here's a little video of Maggie singing
Twinkle, Twinkle, Little Star...

4 comments:

Su-Ann said...: YAY Maggie!!!
It is so heart warming to hear how well she is doing!!! I think of her every time I transport a newborn babe!! or deliver one!
Thanks for letting us hear how well she is doing!; December 17, 2008 at 6:05 PM
Cheryl Corine / Mom / Grandma said...: I love when she says "word" when pointing to something she does not know, and then she says the word after you,, Maggie is amazing!
I love our little angel
Grandma; December 26, 2008 at 3:34 PM
Unknown said...: I am desparate to find information about my baby. He has spent 20 days in the hospital. He was born with Hypotonia which we were told that he would grow out of when he was older. He's 8 months today and has physical and speach therapy once a week. He was coming down with a cold and we gave him tylenol with a low grade fever. On the 14th of December, I went to his crib to find him grey looking and with bluish purple lips and his fingernails the same way. We rushed him to the hospital and found out he had the flu but his Carbon Dioxide levels (bicarbs) were elevated because he wasn't breathing out well. All his tests came back negative and now he is having a 3rd sleep study. I am at a loss since the dr's don't know what is wrong. Your baby sounds just like my Andrew and I was hoping you could give me more information on the floppy windpipe.
Thanks for listening and you have a precious little girl!
Madeleine in CLT.; January 2, 2009 at 1:24 PM
Anonymous said...: We are fostering a little guy with Hypotonia. I was just doing some internet research and came across your site. Thank you, thank you, thank you for all of the time you have put into chronicling her progress. It has been so helpful to me.; January 4, 2009 at 8:54 AM

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.