The Story of My April Butterfly: He is the Light!

Sunday, January 11, 2009

He is the Light!

I know she's on the toilet... but what better place to sing!

He is the Light!
He is the Light!
He is the Light!
The Light!!!

p.s. We are still amazed that she is taking off with her language!
We are even having lots of success with potty training!!!

I've said it before, and I will say it again....
it's all in Maggie's time!

6 comments:

Cheryl Corine / Mom / Grandma said...: Praise `God` for Maggie!
GREAT JOB MAGGIE PIE!
I will pray for her teacher that God will give her wisdom.
Much Love,
Mom; January 11, 2009 at 2:41 PM
Kari said...: How cute! I've heard Abby singing that little song too - I love that they come home from Sunday School with real, simple truths in their heads.

Maggie is making such great progress - what a sweet little girl she is! We'll keep her teachers in our prayers.; January 11, 2009 at 3:05 PM
Ashley said...: Reese was so excited to hear Maggie sing! She did a great job! Reese loves that Jana Alayra song too!! We can't wait for her concert. We will pray for Maggie's teacher. So happy to see Maggie learning so much. She is such a happy little girl.; January 11, 2009 at 3:56 PM
Robin said...: Simply PRICELESS!!!!!; January 11, 2009 at 9:35 PM
Anonymous said...: I'm so proud of you, Maggie. I love you.; January 12, 2009 at 2:59 PM
mommy neal said...: i just wanted to let you know that i have been following maggie's progress due to the fact that my 9 month old baby girl has been diagnosed with hypotonia and global developmental delay. it has been so reassuring and awesome to see her progress. my daughter is almost 10 months old and just started to sit unsupported. she has faced many trials and has been amazing! thanks for your inspiration. if anything has been helpful for you such as therapeutic aids or links on the web please email me at kneal455@gmail.com thanks again kim; January 31, 2009 at 8:38 AM

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.