Just breathe….

Look at the gorgeous hazel eyes… she is such a mix of sugar AND spice!

Sometimes it hits me like a train, and other times like a dodge ball to the tummy.

Today I had another IEP meeting for my little Butterfly.  This time it was to discuss the results of her Adaptive PE assessment.  She was referred for assessment to determine her level of gross motor skills.

The results in a nutshell:
Appropriate age-5 years old in locomotor skills and age 3 in object control.

She is 7 1/2 years old.

I am not complaining, not by a long shot.  I just need to breathe through these moments.  I never knew what her life would look like, but I never expected terms like Special Needs and Assisted Living…. I never expected that at the age of 3 she would be technically labeled at the age of 9 months.

I know that my Butterfly is not like other children her age.  I know that she is severely delayed cognitively and developmentally.  Now I know that is very delayed in locomotor and object control.  I was also given advice of getting her on a local sports team, for Special Needs Children.

Every once in a while these words, terms, numbers and data hit me hard…
and I just need to breathe. 

I love my Butterfly, more than I can handle sometimes, and I will love her the rest of  my life with all of my heart!  I will be her biggest fan and I will try NOT to get in the way of  what God plans to do through her life.

I just need to take a breath first…. then I am ready to go!