The Story of My April Butterfly: Running the Race...

Tuesday, March 8, 2011

Running the Race...

Maggie is running the race of her life.

She is doing all that she can, to her best ability...
and my BIGGEST prayer is that she will know her Lord and Savior
so that one day her race will be worth the pain.

I dream of her seeing Jesus face to face and hearing the words,
"Well done, Good and Faithful Servant!"

There is no greater reward...
no greater award...
and no greater reason for running the race.

Keep running Maggie... Run to Jesus!

5 comments:

Robin said...: Run Maggie Run!!! There is NO greater reward/award anyone can hear. May we pray over our children so that they may hear their father say those words.; March 11, 2011 at 8:22 AM
Priscilla said...: Proud of you, Maggie! Keep on keeping on! Your Mommy and Daddy are guiding you in amazing ways - and you are growing every day in so many ways. . .Grandma loves you and prays for you everyday, too.; March 11, 2011 at 10:22 PM
Cheryl Corine / Mom / Grandma said...: Miss Sunshine, so proud of you!
Our prayer is that you are always pleasing to our Father `God`.
All your family will be running that race right with you, we all LOVE so much!!!
Forever, Grandma $ Grandpa; March 15, 2011 at 6:28 PM
Revell Martin said...: As the mom of a 7 month old boy identified as having hypotonia at birth, abnormal brain development and on an apnea monitor, your daughter's story gives me such amazing hope!! The picture of her running just brings tears to my eyes and I can only pray that with his family and God's help, my son will also have this opportunity. Thank you for sharing the story of your beautiful Maggie's journey.; March 18, 2011 at 12:10 PM
Lisa said...: This is beautiful, Heidi. What a blessing to have this blog as a testimony of God's work in your lives and how she's progressed so far.; April 5, 2011 at 12:47 PM

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.