The Story of My April Butterfly: Jesus Loves Me...

Monday, May 4, 2009

Jesus Loves Me...

YES! Yes, He does Maggie!
p.s. don't forget to turn up the volume!

Now, watch this video I took of Maggie just one year ago...

she has come SO FAR and we are so proud of her:)

4 comments:

Priscilla said...: Precious Maggie!
You are such a champion! Grandpa and Grandma are sooo proud of you for how hard you work and how loving you are. You are simply the best and we love you with all our hearts! Keep up the good work, Sweetie. Hugs and Kisses!; May 4, 2009 at 4:16 PM
Cheryl Corine / Mom / Grandma said...: WOW, way to go MAGGIE CORINE..
You are so inspiring everyday i learn something from you.
All My Love~Maggie Pie~; May 5, 2009 at 10:30 AM
Robin said...: Look at that!!!!! Maggie, what a hard worker you are!!!!! Your singing is music to my ears : )

Heidi, you do such a wonderful job of documenting ALL your children's development/milestones and they will cherish the memories you create and document for them!!!!; May 5, 2009 at 10:59 AM
Cheryl Corine / Mom / Grandma said...: Today is March 17th and I just watched this vidio again for the 100th time... I LOVE this!!!
what a BLESSING!; March 17, 2012 at 3:08 PM

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.