The Story of My April Butterfly: First Day of School

Monday, August 18, 2008

First Day of School

Here she goes!

I love this email I recieved from a friend...
I am definitely meditating on it this morning!

"We are praying for Maggie as she starts preschool. For you as you let her go. As a teacher you know how much this can help Maggie. As a mom, it is so difficult to let them go at any age, but especially when it is sooner than you would have planned. As you send her into the arms of those who could never love her as you do, remember that she is always in the arms of the One who loved her before you ever knew her, and who loves her infinitely more than you could ever imagine!

1 comment:

Laura Ellen said...: That quote made me cry. I am thinking about you guys this morning. I'm quite sure your household feels strange without her.; August 18, 2008 at 10:35 AM

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.