The Story of My April Butterfly: We Wait Upon the Lord

Tuesday, October 9, 2007

We Wait Upon the Lord

We wait....
praising God for the creation he made in Maggie.
What a precious day that will be when we hear Maggie say,
"I love you, Mommy and Daddy!"

2 comments:

Cheryl Corine / Mom / Grandma said...: I know this blog is to help and I KNOW it will. Thank You. Maybe you will here from somebody that has a child that's the same age or older
then Maggie and you can share??
I pray this will help.
I love you ALL so much and will always be here for you.
MOM; October 9, 2007 at 5:08 PM
Alissa said...: Tears of Joy flood my eyes as I read Maggie's story again...I feel your fears, frustration, love and excitement as you walk through this journey. God made such an amazing gift in Maggie. I praise God for His marvelous creation in her. I look forward to taking this journey with you. I love you Sweet Maggie and I love your family too...; October 9, 2007 at 9:58 PM

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.