The newest advice we've been given....
AFO's
No, not UFO's, but Ankle-Foot Orthotics.
In theory, these orthotics would help strength Maggie's ankle muscles, and help to keep her ankle's from putting too much stress on her joints. Hypontonia affects all muscles in the body. And in Maggie's case, her leg muscles are not strong enough to hold her ankles in the correct position- causing her ankles to pop and move in the wrong position.
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The reason I say, they would have worked in theory... is because just about the time these were prescribed for her she was standing on her own, crawling on her own and I believe- on her way to walking. The AFO's had no movement to them, they were hard like a cast. So, once she had these on she stopped standing and crawling because she could not move her ankles at all.
We could have gone back and our insurance would have paid one more time for us to get another pair (they run about $700.00 dollars for ONE- that's $1,400.00 a pair!)
But, it took about 2 months to get this pair. Maggie was walking before we got another pair. We never went back)
.JPG)
The reason I say, they would have worked in theory... is because just about the time these were prescribed for her she was standing on her own, crawling on her own and I believe- on her way to walking. The AFO's had no movement to them, they were hard like a cast. So, once she had these on she stopped standing and crawling because she could not move her ankles at all.
We could have gone back and our insurance would have paid one more time for us to get another pair (they run about $700.00 dollars for ONE- that's $1,400.00 a pair!)
But, it took about 2 months to get this pair. Maggie was walking before we got another pair. We never went back)
UPDATE: We will need to get Maggie supports at some point in her life. Her muscles may be never be strong enough to support her ankles. But that is something we will continue to research with time.
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