The Story of My April Butterfly: More Tests

Wednesday, May 3, 2006

More Tests

Maggie and I met with the neurologist this morning
and he has suggested... more tests!

First, he would like to have an MRI taken
to make sure nothing is wrong with Maggie's brain.

Second, he wants an extensive analysis of Maggie's
DNA/Chromosomes to look for any chromosomal abnormalities.

Third, he has recommended we get in touch with the
Early Start Program to see if Maggie qualifies for in home therapy.

We will now begin the waiting process. Waiting for the referrals to be cleared, for the doctors to be notified and for the appointments to be made. All in all, if any of these tests come back with abnormalites there isn't much that can be done. Maggie will still be on her own time table.
She is a bright blessing in our life and we are so thankful that God has blessed us with her... exactly how she is!

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.