The Story of My April Butterfly: She's Home!

Thursday, April 21, 2005

She's Home!

Maggie was finally able to come home on April 21, 2005!

20 days old

She would have to wear an apnea monitor for at least 5 months,
to monitor her breathing in case her windpipe collapsed again.

It was very scary for us to have Maggie home, because we feared something else would go wrong... but we knew that ultimately God was in control and Maggie is in His Hands! We praise God in this storm and we will praise Him through every day!

We are so thankful to have Maggie home!

Maggie and her sister, Shelbi

1 comment:

Tara B said...: This is an adorable picture! Praise God for a nurse that took a heartfelt interest and for safe arrival back home to the arms of her family.; June 6, 2011 at 1:57 AM

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.