The Story of My April Butterfly: March 2014

Thursday, March 27, 2014

Qualifies for another Therapy

Adding one more to the list of possible therapies… just waiting to see if the school we are homeschooling through will approve the sessions!
This is a big one!Eye Therapy:
“Maggie’s tracking skills are very deficient for her age and grade level.”
”Her saccadic skills are weak for both her age and grade level.”
”Her eye movements are inconsistent, jerky, and inaccurate for her age/grade level.”

“Our overall goal is to not only improve Maggie’s skill set to cope with the visual demands of her academic environment, but to teach her how to properly use her eyes to improve vision with daily activities.”

We are praying that this therapy will be approved… I have always known, as have the Occupational Therapists, that Maggie’s eye-sight and eye-movement have always been a concern. Although she has glasses the prescription has changed greatly and glasses alone will not help her sight.
She needs therapy to teach her HOW to use her eyes!

Hope.

I like Hope.

I live for Hope!

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.