The Story of My April Butterfly: June 2009

Saturday, June 13, 2009

Amazing...

Maggie looks nervous in this picture,
but she was so brave to walk into a room filled with parents and siblings...
all there to celebrate the end of a Preschool year!

Yep... that's right! And END to a year in Preschool!

I couldn't be more proud of my little girl!
She entered this year as a shy 3 1/2 year old who didn't talk,
didn't know how to hold a crayon, cut with scissors, or interact in big crowds!

Now, she is blossoming just as God wants her to...
in her own time, so that His glory and grace can be exampled through our whole family.

I love you, Maggie. You make me so proud each and every day...
You are forever my little Baby Doll... and I love you!

Great job on your first year in school!

Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.