The Story of My April Butterfly: March 2009

Thursday, March 19, 2009

OPEN HOUSE!

The wonderful, Ms. Christie!
The best blessing that God has given Maggie this year!!
She came in as a substitue in October, and she is still there now.
She blesses these little ones with God's love like I have never seen before and we love her!

The sweetest friend for Maggie!
Sienna has been another blessing for Maggie...
she is patient, kind and loving,
and Maggie's first friend!

After Open House we took Maggie for a special ice cream from White Lime!
Yum! Yum!

We are so very proud of our little Maggie...
no words can express.

Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.