Wednesday, December 17, 2008

My Little Angel

Maggie brought home these little Christmas trinkets
from school... how very sweet!

My favorite was this little angel with Maggie's school picture.
Maggie has just a few more days before her winter break...
She is doing amazingly well in school!

We are so proud of her,
and continue to enjoy every new word she has to share with us!

Here's a little video of Maggie singing
Twinkle, Twinkle, Little Star...

Saturday, November 15, 2008

A Blessing


Maggie has had the blessing of a very special substitute for a few weeks now.
This is a very good friend of ours, and her smile and loving ways have been a huge blessing in Maggie's life. Every day that I see this beautiful face there to welcome Maggie, allows me to leave that day feeling at peace. I know that Maggie is being loved and cared for... What an awesome blessing God has given us in our good friend above!

Thank you, Lord.

Monday, October 20, 2008

Share Day

I went to visit Maggie at school today. We were able to spend time watching her Speech Center Time and her Share Day. It was so much fun to watch Maggie doing her thing in school. Her classroom is so rich in activities, language and learning. I am so thankful for the experiences she is having... she is doing GREAT!

Whenever it's Share Day, the student that is sharing gets to choose a song for the whole class to sing. Then they get to be a part of it by using whatever puppet goes along with the song. Maggie picked a song about Ducks... and she got to be the mother duck! It was so cute:) She was supposed to wait until the song said, "Mama Duck called Quack, Quack, Quack, Quack" before she made the puppet quack, but she was having too much fun!

Here's a little montage of our visit today...

Wednesday, October 8, 2008

Preschool Pictures

Today was Picture Day at Maggie's Preschool.
Call me crazy, but I just don't think I will ever pay for school portraits...
with the digital age, and the ability to take and print pictures at home,
why would I pay for pictures that might not turn out that great anyway.

Since today was picture day at Maggie's school,
I decided to take my own, and send her to school all dressed up,
since the pictures will be in the yearbook anyway.

Monday, October 6, 2008

So Many Words...

... I can't even post them all.

It is truly unbelievable how Maggie is beginning to talk.
Have I said how much I LOVE TO HEAR MAGGIE SPEAK??!!!

I don't know if it is that I really didn't believe it would ever happen,
or if I just didn't want to be sad if Maggie never spoke.
It was a wait-and-see type of feeling.

No expectations, no worries, just Maggie being Maggie!

There was a while there where I had finally decided that I would truly surrender all of my desires for Maggie to God. I really did. And it was at that point that I was at peace with life, whether or not Maggie ever spoke.

But, I can tell you now, that I am ecstatic over all the news words that Maggie is saying. Here is a short video I did, trying to capture all her new words. But, is is short as I couldn't think of anymore words and feared Maggie would soon get bored with me... and even though she doesn't quite say all of the words correctly, the fact that she is even close is AWESOME!
here's a little love from Maggie sweet and tender voice!

Monday, September 29, 2008

Maggie

Most kids can say their own name before they are 2.
Maggie is 31/2 and the most beautiful sound came out of her mouth on Sunday.

Turn up the volume and listen...

Wednesday, September 24, 2008

Yeah for School!


What a great adventure so far!
Maggie is doing so well in school, and we are so thankful!!!

Such a cutie-pie!

Wednesday, September 17, 2008

Be Mindful of What You Say...


On Monday, as I was walking Maggie to her Preschool gate I overheard a mother of a Typical Peer (a typical peer is a child who does not have special needs and is a member of the class to be a model to the other students) say the following out loud, "Oh, thank goodness! Now, I get to have 3 hours of peace."

She was talking about her child being in school. Now, please don't get me wrong. I understand a mom's desire to have some down time and some adult time. I know I find rest when the kids are not with me. But, what hurt the most, was knowing that Maggie NEEDS to be in school to be prepared for Kindergarten. She is delayed in most areas and I really have NO CHOICE, but to send her to school at 3 years old. Every day I wake up and fight the urge to keep Maggie at home. Every day, as I hand her over to her teacher and the aides, my heart hurts a little bit. I would rather have her in my arms to love and to protect.

~~~~~~~~~~~~~~~~~~~~~~~~~~
Now, let me add this.
I am not without fault, and I am not judging this mother
without having been in her shoes to some degree.

I have been embarrassed and humbled beyond measure,
and it all happened in the NICU more than 3 years ago.

Maggie was in the NICU, undergoing numerous tests to determine why she stopped breathing at 5 days old. If you have ever seen a NICU most of the patients in there are premature babies, most weighing less than 5 lbs. Most babies in the NICU are hooked up to many monitors, IV's, feeding tubes, etc. So, to come in and look at our 8 lb Maggie, hooked up to only a breathing/heart monitor, she seemed very out of place.

I was very frustrated one day at what I thought should be happening with Maggie's treatment and scheduling of tests. I was very bothered that most of the doctor's left work early Thursday afternoon, and did not return until Monday morning. This meant that if Maggie did not get a test done Mon.-Wed. then she would for sure be in the NICU through the weekend. While I was venting, out loud, my frustrations to our nurse one day, I felt a sudden urge to look to my left. I knew there was a very sick baby next to us. I knew her mother came to visit often. I also knew that this little baby did not look well. That day, as I was verbally complaining about having to be in the NICU longer than necessary, with my 8lb baby in my arms, resting comfortably, I could tell that something was different with the baby next to us.

After a few moments doctors and nurses came to this baby and her mother. They unhooked the baby from her breathing tubes, feeding tubes, and all the other monitors that were attached. They placed the baby in the mother's arms and began to place wall partitions around them. It was quite clear after a few moments that the mother had decided to let her baby go. She was able to hold her baby for the first and last time that day.

I still feel awful to this day. As I was being selfish and overly emotional about what I wanted, a mother sat just a few feet away from me, knowing that she was about to say goodbye to her child. I wonder what she thought of me. I know that I was not showing the light of God that day. I was not showing the Peace of God that comes from surrendering all to Him every day. What she heard was a mother that was not being mindful of what she was saying, and I am sure it hurt her. I am beyond humbled by that experience, and I am thankful that God broke me that day, as I try to be mindful every day of what I say out loud.

You never know who might be listening.

Friday, August 29, 2008

Maggie Can Count!

This is SO AWESOME!!!
Turn the volume WAY UP and listen to Maggie count...

Friday, August 22, 2008

Back to School Night

One week down... and Maggie did a GREAT job!
Everyday she had a smile from ear to ear!

On Wednesday we attended Maggie's Preschool
Back to School Night
~~~~~~~~~~~~~~~~~~~~~~~~~
On a Bulletin board was Maggie's first day of school picture
Their first theme is Transportation...
Maggie painted this bus
They are also studying Body Parts and Apples,
thus a picture painted of Maggie's arm, hand and fingerprints.
We are so proud of Maggie, and we are amazed
at her independence and desire to attend school!
Way to Go, Maggie!
We love you... more than you'll ever know!

Monday, August 18, 2008

She did it!

Maggie had a great first day of Preschool. I stayed with her in her classroom for about a half hour and then made my break with tears in my eyes. I have such excitement for what this year may bring... but it was sad to walk away knowing that this is only the beginning. I love my sweet little Maggie. I am praying for her strength as this year continues and for all the ways that she will bring blessings to others around her~

Here's a montage of Maggie's 1st day Pictures!

First Day of School

Here she goes!

I love this email I recieved from a friend...
I am definitely meditating on it this morning!

"We are praying for Maggie as she starts preschool. For you as you let her go. As a teacher you know how much this can help Maggie. As a mom, it is so difficult to let them go at any age, but especially when it is sooner than you would have planned. As you send her into the arms of those who could never love her as you do, remember that she is always in the arms of the One who loved her before you ever knew her, and who loves her infinitely more than you could ever imagine!

Wednesday, August 13, 2008

We are Ready for Preschool!

Backpack


Water Cups

Nervous Mommy and Daddy
God's love and protection

Wednesday, August 6, 2008

It's Official!

Maggie is officially registered for school!

School starts August 18th!

Pray for us all as we begin this new chapter in Maggie's life.
A HUGE blessing and answer to prayer
is that Maggie was placed with a teacher that comes hightly recommended!!

Thank you, God!

Wednesday, July 30, 2008

Now I Know My ABC's...

Maggie is doing so well with her ABC's...

We are SO VERY proud of her!

( the little abc's you hear in the background are coming from Elijah-
he's only 19 months old.)


We are nervously excited for what this coming
school year has in store for Maggie!!!!!

Tuesday, June 10, 2008

Nurse Evaluation

I wasn't sure how the school was going to test Maggie for vision and hearing, considering the fact that she doesn't totally understand how to follow directions from strangers or follow multi-step procedures. It was a waste of time, but something the school needed to do to "check it off" their list of things to do.


Here's a picture of Maggie. They pushed buttons to have sound come out of each side of the headset. Then they expected Maggie to raise her hand when she heard the noise. That didn't happen, even though I was doing all I could to help. Maggie just doesn't always perform in unfamiliar situations. So, they have asked me to make sure I get a vision and hearing test done through my pediatrician in the next 6 months.

That's it for now. Time for some rest and relaxation this summer in order to get ready for school in August! Wow... still can't believe it! I can't wait to start posting updates of Maggie's progress through school! Pray with us...

Tuesday, June 3, 2008

Pre-School... Here We Come!


Yesterday was our IEP for Maggie
(Individualized Education Program)

We had a Speech Therapist, Psychologist, and Classroom teacher in attendance, as well as Eric and myself. First they discussed their results from Maggie's Assessments. Second, they discussed the services that she qualifies for, and then we discussed goals for Maggie to reach in the next year.

Eric and I both cried as we anticipated what it would be like to actually hear Maggie talk and interact in a classroom all by herself. It was overwhelming for both of us, as we have watched Maggie struggle with most everything since the day she was born. To know that it is beyond ourselves to help her reach these goals, I felt very close to these 3 strangers that were sitting across from me at a table. I knew that in a few short months I would be handing them my daughter and trusting God that they will love her, teach her and grow her in a way I can only dream about... oh, the tears fall as I write this!
~~~~~~~~~~~

Here are the goals we have set for Maggie's this coming year:

Oral Motor
-Perform 10 oral motor tasks to improve
lip and tongue strength and coordination.

Articulation

-Produce age appropriate sounds
/p,b,t,d,m,n,w,h/ in CVC words.

2 Step Directions

- Follow 2 step directions to the spatial concepts
(in, out, off, under), descriptive concepts (big, little),
and quantity concepts (one, all).

Vocabulary

-Learn and use a minimum of 100 new vocabulary words
related to preschool monthly themes.

Expressive Language

-Increase communication through language
of needs and wants in the classroom.

Social Emotional

-Learn to share.

Fine Motor

-Draw circles, lines, as well as simple shapes
using crayons, markers, finger paint, and sand

Pre-Academic
-Learn to receptively and expressively
identify 8 colors and 5 shapes.
-Demonstrate number concepts by giving just one,
one more, count to three and rote count to 5.

Attention to Task
-Sit and attend to circle/group song/activity for 15 minutes
by demonstrating quiet hands, quiet mouth, and eye contact with the teacher.
~~~~~~~~~~~~~~~~~~~

We are still in prayer regarding how many days a week we will send Maggie... but as you can see there is a LOT that we want to see accomplished in a year. It seems obvious that she needs as much time in the classroom as possible. Both Eric and I felt a great peace about the meeting yesterday and about sending Maggie as often as needed.

"Thank you, God, for the peace we felt yesterday. We know that peace can only come from trusting you and praising you with each breath we have. You love Maggie more than we will ever be able to... please continue to give us strength to guide her as you would desire. We pray Maggie's life will continue to bless others, in the name of Jesus."

Thursday, May 29, 2008

A Few Pictures...


Maggie's Assessments have gone very well. I believe she has given the therapists a fairly accurate show of her abilities. I am so incredibly excited to see how Maggie will grow through this coming year.

My heart aches as I think about all the ways that
Maggie's young life has been a lesson in letting go for me.

Letting her go at 2 days old to fly in a helicopter...
Letting her go to be transported by ambulance at 5 days old...
Letting her go every night for 3 weeks to be left in the NICU...

Now, letting her go to school 2 years earlier than I was ready to do.

I love my Maggie, and I know that God loves her more.
I rest in that knowledge.

Monday, May 26, 2008

Prayer for Assessments

Please pray with us as we begin Maggie's assessments for Pre-school!

Tuesday, May 27- Assessment with Psychologist
Thursday, May 29- Assessment with Speech Therapist
Monday, June 2- IEP
Tuesday, June 3- Nurse Evaluation

We'll keep you posted!
Thank you for your prayers=)

Monday, May 12, 2008

Paperwork Done!

I always like to include a picture!
I just love Maggie in piggy tales.

I finished all the paperwork that the local preschool needed before assessing Maggie for services next year. I don't know when we will hear from the school regarding the timeline for assessment since it is the end of the present school year. The Special Ed. Department is, no doubt, very busy wrapping up this year. So, we will wait until the phone call.

Also, I just wanted to share how God has been blessing us with just the right people in our lives. We joined a new church on Easter Sunday and from that Sunday on we have felt that God really does want us to be involved there. We have met many friends and have loved the nursery classes for the kids. The teachers are amazing and we are especially thankful for how they have blessed Maggie. Everyday she comes out of class with a smile and a craft. Awesome!

If that all wasn't enough, we were introduced to the pastor's wife a few weeks ago. Their youngest son is Hypotonic with no official diagnosis. Isn't that amazing? To think that I have a friend and contact regarding Hypotonia right in our very own church. God is amazing!

I have had so many people helping me along the way, and I praise God that he has given us the chance to show His love through Maggie's life. It's an amazing journey and we are so thankful that God is our strength through it all.

Monday, April 28, 2008

Maggie's Communication

This is a video clip that really shows how Maggie communicates to us on a regular basis. You will see her pretending to swim, signing that she wants to sit and signing that she is sleepy.

She's such a precious little doll and I love her so much!

This is why it is hard to let her go out into the public right now. Taking her to church has been great, but it just kills me inside to think of her trying to communicate with people that don't know her. If she is thirsty how will she tell someone?.... if she is hurt how can she tell someone?... if she is afraid how can she tell someone?

We LOVE the new church we have been attending. It really is a place that I feel God desires for us to grow. Maggie has loved going to church and is excited to show us the picture she colors during the service!

I know Maggie is strong. She is a light of God and I know that she will bless many people with her tender personality and gentle love. Just yesterday as we were leaving church Eric recognized one of the ladies that have been with Maggie in her class. We introduced ourselves to her and her family. The very first week we were in church, this lady actually asked us how to sign some words to Maggie. It meant the world to me that someone would take an extra second of their life to ask how they can talk to Maggie. On Sunday she also told us that her youngest daughter just loves Maggie and she always asks if she can go in an help in Maggie's class.

Oh, the tears just welt up in my eyes, and I could do nothing more than hug this loving family! They love Maggie and I feel so very encouraged by that...

Thursday, April 17, 2008

Starting the Process


I contacted our local school district to see if Maggie will qualify for Special Pre-school Services. I have a few pages of paperwork to fill out and then they will assess Maggie.

It's an interesting process. I don't want to be a difficult parent, but I feel like I am going to want to be very involved. I do know that we need professional help through the therapists. But I also know that the old saying is true, "The Squeaky Wheel Gets the Grease."

It's not that I want to be inappropriately "squeaky" but I do want to be Maggie's biggest advocate. That my privilege and my responsibility.

So, here we go... I will be praying along every step that I allow God
to be glorified through all we do.

Wednesday, April 9, 2008

Reality...


I just wanted to take a moment to journal about Maggie.

While Maggie is making her own progress with development, there is a reality that I often have to visit each day. Maggie is delayed. That fact doesn't make my love for her any less... it doesn't make me wish that she were different... and it doesn't make me sad. It's just reality.

I am in awe of God's creation in Maggie. I know that God knew what Maggie would struggle with in this life. I know God is my strength in helping Maggie. Humanly speaking, though, I do struggle sometimes. I watch as we work with Maggie's speech. We say things like, "Maggie can you say YELLOW?" What we hear is our 1 year old, Elijah, saying yellow. Maggie is 3 and she still can't speak.

Now, let me back up a minute and explain why I am journaling about this. It's therapeutic for me, I guess. I remember when Maggie was 1. We went to a birthday party for another 1 year old. Maggie wasn't able to crawl yet and we watched as most of the other 1 year olds at the party crawled, walked and waddled about at the party. It hurt inside to know that Maggie was struggling. Now that Maggie is 3 I am feeling a little bit of that pain again. Most of my friends with 3 year olds are potty training their kids, they are sharing stories of the funny things they say, and some are even talking about Preschool.

I do have a fear that I lay at God's feet every night. I fear that Maggie will continue to struggle the rest of her life. There is an aspect of reality there. Maggie will most likely need physical and educational support throughout her school years.

Physically she will most likely need to have some ankle supports as her muscles do not have the correct tone to keep her bones in line. Her knees, ankles and hips are very floppy for this reason. So, eventually she will need to wear supports to keep her from having joint problems. We are actually praying that she will really like swimming. That would be an awesome sport for her as there would be no impact on her joints.

Educationally, Maggie will most likely need special services throughout school to help her with curriculum. I am not really positive on that aspect, but I suspect that she will need help. We are currently working with the local school district to see if she qualifies for speech therapy through the Preschool that works with special needs kids.

Now, having said "Special Needs"... that's where a slight fear enters my mind. I have been a teacher and I know the label that gets put on kids that have RSP services. The parents and the students all know who goes to RSP services. Those students do find it harder to make friends. Elementary school can be very hard for kids. Teasing, fighting, learning to be independent, etc.

I know, I know... Maggie's only 3 and already I have her in Elementary school with no friends.

There it is... my fear... my prayer request... the burden I have that I must lay at God's feet. I love my Maggie. I am blessed to have her in my life and I couldn't imagine ONE minute in this life without her.

Just wanted to share a raw moment with the blogging world...

Friday, April 4, 2008

She's Saying "Birthday!"

Tuesday, April 1, 2008

Happy Birthday, Maggie!

It seems like yesterday you were born...
It is hard to believe that we were chosen to be your parents.

You are an unbelievable blessing in our lives
and we love you so much!
God loves you even more!

Happy 3rd Birthday, our sweet Maggie-Pie!

Monday, March 24, 2008

Love this Smile



Here's a short little video clip of Maggie trying to say her ABC's!

Monday, March 3, 2008

Maggie's Development


Things have been changing for Maggie is a wonderful way! She is saying more words like: bike, stop, orange and book

Even more exciting than that is that Maggie is starting to really communicate with us. By that I mean she is using signs and words to tell us what she desires.

Blowing a whistle!


For example, just today she signed to me that she wanted something to drink. Before she would just whine and maybe point to water. I usually had to be already aware of what she would want, or play a guessing game until I figured out what she wanted.

Now she signs a lot and it so amazing to watch her smile when she realizes that she can finally communicate with us!

Wednesday, February 6, 2008

Go, Maggie, Go!

I wanted a little video to go with this post. Some of the words are repeats, some of it is signing, and mostly it's just to have Maggie's adorable little face on the screen!

This is an email I received from the therapist we were introduced to... to help us with Maggie's speech. It really made feel good to hear the feedback and positive progress that Maggie is making! I love my Maggie-Pie and I am so thankful that she is talking! I also thank our therapist for the awesome advice and knowledge she has given us! A true blessing from God! Thank you, God!

"Maggie has really "exploded" in terms of speech. She even made quick progress with the /g/ which isn't expected until age 4. Many kids have it earlier than that, but it isn't considered "disordered" unless it's not in place by 4. So great job! The sounds you can play with are p, b, m and all the vowels...then k-g since she has them, then f...then try s, sh and ch. Since she can do g..try adding the /r/ and make it a growl. You could go to Party City and get an assortment of horns and whistles to play/practice with...helps to strength while having fun. It is apparent that you are giving her lots of stimulation and feedback. She now knows that she can DO this!"

Friday, January 11, 2008

So much progress!

It is absolutely amazing for us
to watch Maggie begin the process of speaking!

She is gaining so much confidence lately
and is willing to try talking more.

Here's her latest video of some words...
enjoy our little tender heart!