The Story of My April Butterfly: November 2007

Friday, November 30, 2007

Private Time Chatter

Sometimes the bathroom is the only place
a person can have some private time...

We were practicing on the potty yesterday
and I HAD to go and get my camera to capture Maggie's chattering!

Here is a glimpse of our new Chatty Cathy Doll!

The words are trying SO HARD to come out!

Wednesday, November 21, 2007

Maggie blows a bubble!

Our friends from New Zealand did more than just visit...
they helped Maggie blow a bubble!!!

Blowing bubbles has been something we have been working on with Maggie because it helps her mouth muscles to work along side with blowing air. It was so special to have Lynn be a part of Maggie's progress!

Way to go, Maggie!

Thursday, November 8, 2007

New sounds... New words!

Maggie is making new sounds...
this may not sound like "puppet",
but she has never made these sounds together before!
WooHoo, Maggie!

We are so thankful for continued progress!
She is our joy!

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Maggie spent the first three weeks of her life in the NICU... first to investigate an irregular heartbeat- cleared with a diagnosis of a wandering pace-maker and sent home at 5 days old. She stopped breathing 2 hours after we had been home... we gave her rescue breaths, called 9-1-1 and Maggie was transfered by ambulance to the NICU, again. At 20 days old Maggie was sent home with a diagnosis of mild Laryngomalasia (floppy windpipe) and an apnea monitor to wear for 6 months. At one year of age Maggie was diagnosed as Hypotonic and spent the next 6 months of her life being seen by a Neurologist, a Genetic Counselor and Occupational Therapists. She began early intervention for her developmental delays. At age 3 she began attending a Special Education Preschool. She attended a typical Kindergarten class with RSP help for fine motor delays. Beginning in 1st grade she began her journey through Special Education for intensive help with many developmental and cognitive delays. Beginning in 3rd Grade I decided to Homeschool Maggie through a local charter school. She still received Special Ed. services, but I was in charge of her daily curriculum. We began her 5th grade year by enrolling her back in public school. This year will either prove to be a great stepping stone to the rest of her education, or it will be a year to revisit other options. This is our journey living with a child who is Hypotonic.