Sensory Overload

We have been told by other parent's that have children with Hypontonia that they sometimes have sensory deficiencies. Sometimes they don't feel certain senses as they should (such as a high tolerance to pain) and sometimes they are over sensitive to certain things.

For example, Maggie HATES to feel grass! She will do anything she can to not touch grass. Here's a picture of her crying for help because she doesn't want to crawl on the grass.

Cutest Little Pirate

The next adventure in Maggie's life. Her left eye wanders when she is tired or looking at something far away. So, for three months we have to patch every other eye for the last two hours of the day to give her eyes extra rest. Hopefully this will give her more strength in her eyes to control their direction.She is still the cutest little pirate we've ever seen!

UPDATE: The patch didn't really work for Maggie, as she was ALWAYS pulling it off (looking back, we should have been told to start the patch earlier- at an age when she wouldn't be as aware or able to pull it off).

We worked really hard to help her keep it on- distract her, sit with her for those few hours, but ultimately her eye just needed time to strengthen. Realizing what Hypotonia is- a weakend muscle system in the body- many of Maggie's muscles need help getting strong. Her eye stopped wandering soon after we stopped using the patch (about a month) so that might have been enough time for her to strengthen her eye.

Maggie is Crawling!

At 16 months, Maggie has finally decided that it's time to crawl!

WooHoo!
Go Maggie, Go!

Standing!!!

Go figure~

Maggie isn't crawling yet, but she can stand by herself!
The therapists are confused because she shouldn't be able to stand straight up without using her hands to get her up.

I think Maggie is on her own timetable. She's determined to make sure she's noticed! And, she will do what she's gonna's do when she is ready to do it!